ten things: bitch what is going on

a collage of book pages covered in small print

You’d think that since I’m writing every day, that I’d be here more. NOPE. Everything I’m pouring out each morning is apparently only for me, because I’m processing a lot of shit right now.

cw: mentions of mental health challenges including suicidality; also spiders

one: writing

I’ve been writing on 750words.com off (mostly) and on (very very occasionally) since 2010, and I rediscovered it several weeks ago and I have been writing every day for the past 23 days. I am proud of myself. It’s not easy for me to have consistent routines, but I have been able to continuously prioritize it each day even though most of my days have revolved around helping care for our six-year-old. I’m proud of myself.

two: bleeding

I am pretty sure I have been experiencing PMDD for years, and the only reason I didn’t fully realize this is because having a menstrual cycle is extremely dysphoric for me, so I don’t associate anything with the word ‘period’ in it with myself. I don’t even like calling a menstrual cycle a ‘period’ because it feels like I am calling myself a girl if I use that word. Hell, I don’t even like calling it my menstrual cycle. I don’t want that thing, get it away from me.

Having irregular cycles has been my normal for the past eight or so years, and I keep hoping it’ll stop and just go away and never come back; but I have been in perimenopause for so many years now that either it’s going to be like this forever, or I’m close to the end. Maybe. I do finally have a referral for a specialist here that will be seeing me for ‘irregular periods,’ so that eventually I can go back on testosterone, but more important: please fucking help me with perimenopause, I am miserable.

It has been very common for (what I am accepting is) PMDD to manifest in me as ideation. I’m really fucking depressed most of the time, is what I’m saying. I am fucking struggling. I am having days where I have so many mood swings that I feel like I don’t know who the fuck I am. I am clinging by my fingernails to whatever scraps of sanity I feel I have in a given day, trying so hard to regulate my emotions all day until the sun goes down and I end up, inevitably, bawling about something and then being so upset with myself about it later. I’m trying very hard to be kind to myself. I’ve been honest with my family about how I’m feeling, although I still don’t recognize it when it’s happening about half the time.

I am doing my best. Hopefully next time I talk to my GP, I’ll remember that I need help with this too. Sometimes it’s all I can do to remember to ask for help for my MCAS, and that’s the thing that presents the most.

three: relationships

It feels like the start of a new relationship is the WORST possible time to have hormone problems and extra depression. THANK GOODNESS WE’RE BOTH FUCKED UP HAHAHAHA. Haha. *ahem*

I knew, logically, that a new relationship that is healthy and fulfilling in new and different ways from other healthy relationships I have, would open up stuff in me and shake things loose, but I didn’t realize how much shit was in there that’s been kicked to the back of the closet, metaphorically speaking. What I’m trying to say is that I have a girlfriend who is amazing and I’m a weepy bitch who just wants to write, work out, and cuddle, and is so fucking sad when either of us needs to go to bed early. It’s so ridiculous, y’all. I’m head over heels.

four: ranch dressing

Picture this: we1 are Americans who love ranch dressing, and now we live in Australia where there is no naturally occurring ranch dressing. IMAGINE THE HORROR.

Ash found a recipe that they tried once, and then I made it a few days ago, and we are mostly happy with it. It calls for pickle juice and buttermilk, both of which are definitely good and correct, but I think the type of pickle juice will be fun to experiment with. We both love bread & butter pickles, so that’s the pickle juice we have available (right out of the jar), and I wonder what dill pickle juice would do for the flavor instead.

We did finish all of the batch that I made, though. My favorite lunch right now (my autism safe food) is a chicken sandwich: it’s made with either two or three chicken tenders (depends on my appetite) which are prepared in the air fryer, and then put in a sandwich like so:

Then layer the chicken on and put the slices together and then into the panini press, but! with ranch dressing do this instead:

  • ranch dressing on both sides of the bread
  • Nando’s chilli jam on both sides
  • cheese on both sides
  • chicken tenders
  • more ranch dressing drizzled on the tenders

And then a little bowl of ranch to dip the sandwich in after it’s all toasty. Delectable.

Anyway, next time I want to try dill pickle juice, to see how it changes the flavor in an even more delicious way. Either way, I’m making more after today’s grocery trip.

five: spiders, man. fucking SPIDERS

It’s summer here, and when it’s very very hot it’s Spider Weather. Also, when it rains a lot, it’s also Spider Weather. It’s just almost always Spider Weather.

The other night, I walked out to my camper with my bedding–I’d had to sleep inside for several nights because we have been having a pretty intense heat wave–and I discovered a large huntsman spider just kind of casually sitting on my doorway; like, half over the doorframe, so it was just kind of looming; and because of the aforementioned depression and mood swings and also because it was dark and I wanted to go to bed, I fucking burst into tears and walked back to the house sniffling and crying, and slept inside again. Everyone else was already in bed and I did my best to emotionally regulate on my own but it took me about an hour.

I just didn’t want to argue with the spider over whether or not I could open the door and be inside without company. Too much emotional labor.

On another recent night, I was sitting on my bed when a big ol’ huntsman (Vincent identified it as a traveling huntsman) just hopped up from the floor somewhere and crawled into the alcove where I keep my books sometimes and started cleaning one of its front legs and I had to ask Vincent to come escort it out because (picture my crying face here, I’m very undignified). I just couldn’t.

I am extremely grateful for the fact that all the huntsman spiders on the farm seem to get no larger than about an open hand; so the body is never even as big as a fist, usually smaller than that. Really, they’re all legs. And if I saw them in places that weren’t startlingly much closer to me than I expected? I think I’d find them fascinating. They are very interesting, they are clearly intelligent, and I hate how we have to disagree over who lives in what space, honestly. I accidentally killed a baby huntsman a few nights ago when I was sweeping, because it was on the floor and I didn’t notice it until I was already doing the sweeping motion with the broom and that was the end of it. I’ve never seen such a tiny one before. (It was compared to other spiders not very tiny, it just seemed like it was because usually they are pretty large)

six: always leaving, always coming home

Last week, two of my kids flew to Bangkok again, and soon Rose will be home for Christmas. I have been doing laundry and anticipating many many hugs.

Vincent and Bee will be in Bangkok until early February, and if Vincent gives me the go-ahead to share anything about its trip this time, I will happily do so. Suffice it to say that I’m bummed I can’t go back yet, but I’m really glad that the two of them are able to do this right now.

And we’ve all missed Rose so much here. Robert has been without mum for more than three months and that is hard on a little guy. The nature of what we’re all doing together–our adventures as we gradually get on our way to Ireland, that is–means that we usually can’t all be in the same place at the same time. We are always shifting and re-adjusting and re-locating. Every time I get used to the way something is, it changes again. My autism HATES it. My ADHD loves it.

I am hoping that I can go back to Thailand myself, early next year, so that I can finally do the Thai language courses I’ve wanted to take. I have been wanting to do this since before I left Thailand in the autumn. I did not expect to fall in love with Thailand the way that I have; I thought I would try my best to be comfortable in Australia, and I would try really hard not to dislike Thailand, and just wait for Ireland; but I love it here in Australia, and I love Thailand so much. I think it is one of the best places I’ve ever been.

seven: library books

I have a library card. I have been borrowing and reading books. There is nothing so comforting and grounding as having gone halfway around the planet to find a library with books that I want to read.

I read Automatic Noodle (Annalee Newitz), Every Heart a Doorway (Seanan McGuire), and The Raven Tower (Ann Leckie) in the past several weeks, and I’m currently reading Polysecure (Jessica Fern), Harrow the Ninth (Tamsyn Muir), Care Work (Leah Lakshmi Piepzna-Samarasinha), The Empress of Salt and Fortune (Nghi Vo), and finally–I have resumed reading The Unreal and the Real: Selected Stories, Volume Two: Outer Space, Inner Lands (Ursula K. Le Guin).

I was reading The Unreal and the Real back in Michigan before I left, and had to return it only having read the first short story in that volume, “The Ones Who Walk Away From Omelas,” which is uncanny and sticks in the heart. It is a surreal experience to pick up the same book at a library in a new country, which looks almost exactly the same as the edition at the library in Jackson Michigan, down to the dust jacket and vague yellow tinge, and carry on reading it as if I’d just put it down for a little while, as if it’s the same physical copy.

eight: allergies

My new GP has given me a new prescription nasal spray, and recommended a new OTC antihistamine that I’ve been able to add to my regular day & night meds, because it’s very allergy season out here right now. I spent about a week waking up with migraines and feeling just generally horrible, and thankfully I had a doctor’s appointment to follow up on some labs I’d done and I was able to ask her for help with meds.

The nasal spray isn’t covered by the socialized medicine here, which is generally called the Pharmaceutical Benefits Scheme. The PBS covers all my prescriptions right now except that one, which means that when I go to the chemist to get a script refilled, it’s less than eight dollars to pay for it. Understandably, because I am American and even with the best health insurance I could get, it was not this good, I have been anywhere from shocked to upset to passively accepting this good fortune. So it does not bother me that the nasal spray, which is meant to last about three months, is about forty dollars (Australian dollars). ONE OF MY MEDS WAS ABOUT FIFTY UNITED STATES DOLLARS EVERY MONTH EVEN IN THAILAND WHERE IT IS QUITE INEXPENSIVE, I CAN MANAGE THIS WITHOUT EVEN BLINKING.

nine: outdoor kitties

There are stray cats here on the farm, which I think is pretty common here. In particular, there is a tabby ‘mama cat’ and two boy cats: a sad ginger man, and a nervous black-and-white fluffy guy. And recently she had babies, of which there are five, each one somehow cuter everyday than the day before.

We are putting out food and water for them, although we won’t name them and we don’t touch them at all, because we are hoping that we can take mama cat in soon and have her adopted (and now also the babies). She is very friendly to people and it seems like an indoor life would be so good for her. Although she might miss crouching on the driveway for a nap at half past midnight while her babies play in the grass, and scaring the shit out of me as I walk past to the house for the bathroom.

Along with the spiders, and the birds, I am also doing my best to be a good roommate to the stray cats. We haven’t named them except for using kennings to refer to them amongst ourselves, but we are always kind to them and we speak to them with the same gentleness and lilt as with our own indoor kitties.

ten: when I move my body, I feel better

It’s annoying that exercise really does improve my mental health. And no, I am not jogging or doing lots of hard heavy sweaty work. I’m not here to injure myself, I know better than that. Victoria (person formerly known as my mom) punished herself with exercise a lot while I was growing up, so I am extra aware of how easy it is to turn it on oneself and go too hard.

I am back on my every-other-day (realistically, three times a week) workout plan. I stretch in a careful non-harmful-to-my-EDS-body way, I do some various situps, I do some squats, I do some wall pushups, and then I have been working my way through the weight set that we have here in Australia. Previously I was using the metal barbell set in the house in Thailand, so after weeks of not doing any weights here, I’ve been re-learning how my body can manage weight lifting.

There is nothing quite like the inaudible humming vibration in my whole body when I am lifting an appropriate amount of weight for a non-harmful amount of time. It is a sweet, strong, wholehearted feeling that spreads into my mind and heart and tinges everything with a faint taste of goodness and rightness for a time. I wish I’d known this sooner, but I am glad to know it now.

I really thought this would be a throwaway post, something to write when I didn’t feel like I could say anything much

Sometimes I just need to start writing and my thoughts will unwind themselves into words. Not always, but often enough that it’s worth it to try again.

xox,
Nix


ephemera:

How come you fix me when I’m low?
But still you’re everything that kills me slow
This purgatory can’t go on
But once you’re dancing with the devil
It’s so hard to hate his song

Baby, you’re the antidote
Barely keeping me afloat
Glamorize, my demise
From riding on a rollercoaster
Even when the thrill is over
I’ll risk my life for you

(Up and down we go)
(Keep me hot and cold)
(Never let me take control)

Oh
Oh no
I lose all my composure
Looking for closure
Let go
But somehow you pull closer
(This game is torture)

Give me adrenaline
Then fill my heart with sin
Spinning in circles til my car crashes down your street
It’s no fun in the driver’s seat
Alone

How come you fix me when I’m low? (How come you fix me when I’m low)
But still you’re everything that kills me slow (Slowly caught in the middle)
This purgatory can’t go on
But once you’re dancing with the devil
It’s so hard to hate his song

— selections from Purgatory by Nico & Chelsea (from the album Purgatory)

featured image is a photo by Patrick Tomasso on Unsplash


  1. Ash and I ↩︎

heat {poem}

an image of the colors red and orange

I have had two three heat-related chronic illness flares in the past week. And it’s very difficult to explain what those are like, but I tried anyway.


it’s hot, I think
I can walk through the sunshine it’ll be
fine this time,
just a short walk
and I have my hat on
so long as I don’t need to
do anything else for
a while

I forgot to wear
my UV jacket with
the long sleeves,
it’s hanging up by my camper door
and I forgot anyway
it’ll be fine? I’m
fine I think

I sit at my desk
and my insides feel kind of
like I am about to
fold up in half, across
a pocket of weak dizzy
adrenaline-spiky orange swirly
energy
that’s
how I know I
flew too close to the sun

I have to go outside again
this time with my umbrella,
fuck it’s hotter out than a
little while ago,

I’m pretending I can walk in a straight
line, I am not going to
fall over it’s
probably fine? I’m
fine I think

back inside and the spiky
worry swirl of weakness is
spreading a little, dammit,
it was less than three minutes I think
I need to go to the toilet
there is a hot rectangle shape of
heat across
my forehead and this
is when I start to fall because
my heart rate is
dropping, so of course my
legs can’t support
whatever is
happening, I’m
fine I think I’m not fine
, I
have to sit down

why
are my words,,, so
unable
I am breathing too
fast but
tired
I can’t
say
anything
sleep,. rest, the cold
floor like
it’s how the floor holds
you when you”re
sick, am
I sick/? right, yes
just
breathing, not die just right now
how silly
crying? why what is the
ppoint what does
this do
maybe its a crash or
why can”t I think

I forgot
I forgot to take a rescue med
where is my water bottle?
it’s not that hot,,, I’m
probably fine now, I’m
not fine it’s okay don’t worry about me
sorry sorry please don’t worry but also
help, I feel
sick and stupid and
I am trapped in my own head
and my own body
it’s too
hot today


featured images is a photo by Alexander Grey on Unsplash

thirty-seven celsius: is it hot outside or are you a medically accurate body temperature

cw: I’m talking about tracking my health data, and also about spiders; you can skip around or just skip this one in particular, no hard feelings xoxo

I live in Australia now, and I have been acclimating to much hotter (and dryer) air temperatures. It helps that I went and stayed for almost six months in Thailand this year; there’s nothing like VERY heavy humidity and heat all day and night to adjust your body to that kind of nonsense.

I am also getting used to referring to temperatures in Celsius, although I do still calculate them in Fahrenheit to grasp the physical and emotional weight of the heat sometimes, like for example today’s predicted high of 37C. This is the equivalent of 98.6F, which is the body temperature that I was taught as a child was “normal.” Above 98.6, you might have a fever. Below 98.6, maybe you had a naturally lower temperature, or maybe you had hypothermia. Or you were dead! Whichever.

My normal body temperature has always been below 98.6, and here in Australia when I take my temperature and it shows me in Celsius what it is, it hovers between 36.0 and 36.8, which makes sense to me. I don’t think it means anything, but it’s interesting.

Anyway, it’s going to be really fuckin hot out today.

name and gender marker changes

In Victoria (the state where I live) it is now free to change your gender marker / sex at birth, and you can also change your name for free if you do it at the same time. I will be able to do this myself here within a year!! DO YOU UNDERSTAND, THIS PROCESS IS TRICKY AND COMPLICATED IN THE STATES!!! It involves legal paperwork here too, of course, but it is not difficult or impossible; it’s just paperwork. And I can do paperwork. Boy howdy, I have been doing paperwork for decades now. Nobody prepared me for how much paperwork you are always needing to do once you become an adult.

No quicksand, but lots and lots of fucking paperwork, and usually it’s paperwork I already did before.

So, I have the better part of a year to decide if the name I legally take is the same as the one I’ve been going by. There is a secret extra last name that I may add to it, but I’ll decide for sure later.

this ring doesn’t give me superpowers at all

I have a new health tracker ring (they were on sale) so that I can start keeping track of my health data again, which actually means something given that I have established medical care here now. One of the things it does is track steps, but not very well–yesterday I drove an hour and a half into one of the nearby cities for a family member’s medical appointment, and an hour and a half back, and my ring data is positive that I walked (very fast, I guess?!) over 1600 steps while I was, in fact, driving the car.

The other thing that it does, which I need it to do, is track how I am sleeping, because my experience of sleep is pretty shit most of the time. The first night I wore the ring, it said that I slept all of 2 hours 26 minutes. It didn’t even register the first several hours of sleep before I had to get up to go to the bathroom, or the fitful hour or so after the second bathroom trip at 6am. The second night, it had no sleep data at all. I went to bed with a migraine and apparently my body never relaxed enough (based on temperature and heart rate mostly, I think) to register that I was asleep. I certainly did not feel as if I had slept; it was more like I was unconscious for several hours and regained consciousness when I needed the bathroom. I have body temperature and heart rate and blood oxygen data, just not sleep data.

Last night (the third night), I managed to get 5 hours 44 minutes of sleep before I was up early for the bathroom. Hooray for me! Ash is pretty sure that I need to do a sleep test, although we are both also pretty sure that I will fail it. At least I finally got some fucking sleep. It’s going to be hot tonight and hopefully there is enough cool air in my camper from the air conditioner unit that I have a chance of sleeping comfortably.

spiders georg

spiders Georg tumblr meme originally posted by Max Lavergne

As I keep bringing up (annoyingly, perhaps), I now live in Australia, famously the land of everything that is trying to kill you, and also spiders. There are days when we need to remove/re-home multiple spiders from various places inside the house, and occasionally from inside my camper which is where my bed is and also where I keep my stuff.

Most of these are huntsman spiders, of which I now (upsettingly?) am familiar with several species. Some of the spiders we find in our living spaces have deceptively bland names like ‘house spider,’ although we also have orb-weaving spiders, wolf spiders, and daddy long-legs in and around the house on occasion. I’m sure some of you may have seen photos or, unfortunately, VIDEOS, of Very Large huntsman spiders the size of an entire wall, but the ones around here are approximately fist-sized. That’s including the legs, so it’s not a fist-sized body and then a massive amount of pipe-cleaner legs. Although they do kind of look like pipe-cleaners, or like they are wearing corduroys, or stripey socks.

If they weren’t so inherently startling to me, they would be awfully cute. I have tried very hard to learn not to be so immediately frightened of them, because none of them are running at me waving sticks or screaming. Sometimes a spider that needs to be moved is very determined to stay where it is, and we have to cajole them into the large bucket that Vincent uses to safely capture them for relocation. I am almost positive that several recently relocated spiders have come back into the house and needed to be removed again. I do tend to anthropomorphize things quite often, but it seems to me that those spiders have been noticeably peeved.

If I can’t see them (even when I know they’re there somewhere), or they aren’t 1) crawling on me, 2) sitting on any of the things I identify as My Stuff that I Need To Use, or 3) building webs in places inconvenient to me [like doorways], I don’t mind if they are just doing whatever they are doing. I’m not here to kick them off where they live, I just want to be a good roommate to what already lives here. In return, I try to make it obvious that the space I want to occupy is where I’m spending my time, so that it makes sense to them not to try and hang out or live there.

Also: we have a snake bite kit in the big first aid kit by the main door, because it is also Snake Season now that it is quite hot and getting into summer. And we all have health insurance and know what the emergency number is.

it doesn’t feel like christmas to me

I have been emotionally disconnected from the holiday season (Thanksgiving and Christmas and New Year in the states) since last November, and maybe the November before that one back in 2023.

The only reason I know that this is the time of year when there are snow days and Christmas trees and holiday decorations on main streets back where I grew up, is that I see social media posts by my friends and acquaintances who still live there. There are no snow days here but there are decorations and Black Friday sales, which feel odd to me because of the emotional disconnect–and additionally odd because it’s 37 Celsius today but there are Santa decorations for sale in the shops and Christmas-themed baked goods in the grocery store.

how to measure time

Maybe when we move to Ireland, into the same general latitude as the one back in Michigan, I will feel the overlap of cold weather and twinkling colored lights and wrapping paper-covered gift boxes and remember what it feels like to celebrate those holidays in a happy and nostalgic way. Right now, I live in the desert, in a bright and sunny and windy place where my family also lives, and it’s been summer or nearly-summer or recently-summer for me all year because I also was in Thailand for half of it.

The sky at night is brilliant and the moon is bright enough to cast shadows from its first quarter phase through the full and last quarter phase. I don’t know the stars well enough to identify where in the seasons I am based on what I can see; what I see is a vastness, an endlessness, which is strangely comforting and feels perfect and good, but it does not coincide for me with any experience of where I am in time.

Time here, for me, is measured in moon cycles; in the span of a week from Sunday to Saturday; in how much recovery time I need for the effort I’ve spent; in weeks between water deliveries; in library book due dates; in the regularity of the six-year-old’s bedtime every evening; in how many doses of a prescription I have left before I need a new script from my GP; in how many minutes or hours or days it’s been since I last kissed my girlfriend.


ephemera:

my spouse StarChild has started writing at a new blog 👉

Cain Culto has a new song with Xiuhtezcatl, ¡BASTA YA!; it is AMAZING, do recommend!!

I’ve moved from Spotify to Tidal, although I haven’t decided yet if I’ll stay there or go to Qobuz; but for now, I have 2 months and change of listening history, enough for a 2025 Rewind, which you can see here 👉

sometimes when the six-year-old is emotionally dysregulated, this Stray Kids music video helps when we watch it 2-3x and also sing all the English lyrics and some of the Korean ones (deong gideok kung deoreoreo)


I feel tired and it’s only 1:55pm. This is what happens when you get up early!! You need a nap!!!

I hope your days are not too exciting nor too boring. I hope you have shelter and sustenance. I hope you get hugs sometimes. And I hope you don’t have to dissociate too much today in order to make it through.

xox,
Nix